CALL TO ACTION #2
Autumn, 2006
from Pat Smith, President, Lyme Disease Association, Inc. (LDA)
"Crime against Lyme"
- ONGOING ACTIONS!
* Continue to get signers onto the petition
* Continue contacts with your local media about Guidelines impact on
you/family/friends.
-
NEW PRIORITY!
* Contact (phone/email) all of your FEDERAL legislators: your own US
Congressman and your two US Senators by November 15 at Washington, DC
office only.
* Groups should contact all Congressmen within their range (area
they cover).
-
US Reps. & Senators DC contact information
http://www.visi.com/juan/congress/
Tell them how Guidelines impact you/family/friends.
November 2, 2006 finds us on a path taking specific action concerning the
reprehensible IDSA Guidelines, but we have along way to go. The
International
Lyme & Associated Diseases Society (ILADS) has sent a letter to IDSA
demanding
retraction of the Guidelines. LDA has continued to push for the national
petition which now stands at about 10,000 signatures. We need many more
since
only numbers will show we have the clout necessary to turn this situation
around
and regain control of the diagnosis and treatment of Lyme disease. We
believe 50,000 is a number which shows strength.
Help is on the way. Thanks to advocates working in their states to contact
newspapers as we asked last time, articles are beginning to appear about
both
the guidelines retraction and the petition. Please remember these are only
beginning steps which lay a foundation for other activities which already
are
occurring or will occur. When you contact the media, talk about your
problems
with the guidelines, (or your group's objections) and mention in a
sentence
that ILADS, the International Lyme & Associated Diseases Society, a
professional medical organization, has written to have them repealed, and
that the
national Lyme Disease Association has a petition on its website for all to
sign
(add in web address).
Rocky Allen of NYC's WPLJ 95.5 radio is promoting the petition each day on
his ShowGram weekdays 3-7PM and on his personal website
http://www.rockyallen.com/.
Barbara Ficarra, RN, host of Health in 30,
Fridays, 5:30-6:00pm EST,
WRCR AM 1300 Radio Rockland & Streaming Live On-Line at wrcr.com.in
Rockland
County, is also promoting the petitions and the plight of patients on the
show
and her website.
Thanks to a number of people writing in with helpful suggestions about the
petition, it will get a larger font, be paragraphed, and will have the one
typo
fixed (thanks to those with eagle eyes out there). An explanation about
the petition will appear on the homepage addressing some of the questions
we
have received: the petition on the LDA website
http://www.lymediseaseassociation.org/
is for those 18 years and older to
sign. Names and addresses will NOT appear on the internet but will be
printed out with the petition when it is ready to be presented to the
appropriate
entity. LDA never sells names or shares them with marketers. The petition
will be used to influence government action. Remember, like you, LDA is
all
patients and families of patients - and all volunteer.
Keep the faith, the road is long, but we will prevail.
Pat Smith, President
Lyme Disease Association, Inc.
PO Box 1438
Jackson, NJ 08527
888-366-6611 information line
732 938-7215 fax
www.LymeDiseaseAssociation.org
***
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